How important it is to be around people who just get it. Even just to see another child who has the same condition as yours can feel liberating. Like you're not making this up.
You don't feel alone, and for a moment, you can take a deep breath.
Who can relate?
...and yet my son has benefited from all of the people who have come into his life. The good, the bad, AND the ugly.
It hasn't always been easy this road that we have taken...but it has shaped him and I in many ways.
I could not have come to this point without the countless Souls who have been there when I needed them the most. Everyone from the first little boy with Asperger's I met just after my son got diagnosed, that showed me I was on the right road. To the teachers aid that put in long hours to make sure Luka knew what he needed to, and then, worked even harder to make sure he was prepared after he left her.
To the many Mom's and Dad's and kind strangers that were so patient with him (and me!) and who constantly reminded me he was O.K and..."just being a kid" when I hovered a bit too much. To the people who pushed us...and the people who hugged us. To the 2 hour phone call with my Dad when I struggled with getting family to understand. To my parents who read up on my son's condition and worked hard to understand him. To the many people who didn't agree with how I did things and were incredibly vocal about telling me...and to the brave Souls, at necessary times, who defended us.
My point to all of this is...this road may not be an easy one, but there is always hope...and help...if you are open to it. If you are Willing to look around and really See it.
To those just starting out...it get's easier...and then in other ways harder...stick with it. Don't quit. Follow every avenue available to get your child what they need. Never assume it will all come from one place. Defend and push where you need to. You know what your child needs, go after it...but also...be open and don't forget to listen. Sometimes when we're "in it" we can lack perspective. Remember that there are so many more children out there and they all need help too.
For those who have been in this for a while...give yourself a pat on the back...know that you are a rock star. No...probably no one has told you...so tell yourself. Even more so, tell someone else. Mom's and Dad's. This is challenging work. So if you have a resource or have learned something along this road...don't forget to pass it on. Through word of mouth, through a blog, or even by putting something together for other parents at your child's school. A little goes a long way....we, our kids and the countless children out there and coming up need all the help they can get. So please share with the World.
Get support. Be support...and remember that this IS a road...so don't focus so much on the destination. Just one day at a time...
Oh...and don't forget that your children see your faces everyday...so smile. You are the first place they learn courage from...and happiness.
There is so much beauty in this process...be willing to see it.
Until next time everyone. My best wishes to you all.